Meet Kane

Greetings from Camp New Hope!  The sun is finally shining and we are beginning to dry out!  This rain has opened up a few new springs so we have have water standing in the flats that are usually dry.  Oh well,  we always wanted hot springs here…the only problem is this water is really cold!

Meet Kane our guest last week from S.C.  Kane is 5 years old and has been diagnosed with Battens which has no cure, no treatment and for now is fatal.  Kane is a beautiful little boy and is here this week with his family.  Kane was at the Battens conference last week and his mom said they now have 500 cases of Battens in the US.  Kane was diagnosed with Battens in December.  He has already lost his eyesight, his ability to walk or talk and he is G-tube fed.  It just breaks my heart that he has to go through this but I am so grateful that he was able to come to Camp New Hope.  He has such a lovely and supportive family.  He has enjoyed the singing with Martin and the carriage ride and train ride at Ernies.  We will keep our fingers crossed and maybe he will get to go fishing at the Rubino’s on Thursday.  His parents were able to get him in the river in one of the tubes for a short while.  We are doing everything we possibly can to make sure he has a great week.  Please pray for a miracle for this little boy.

Some of our garden just got too much rain but the cucumbers love it!  We have plenty of them to share with the family.  I never knew that zucchini  could grow so fast.  One day they were small and then it rained for 2 days and we didn’t pick them and when we checked on the garden they were bigger than my arm so I had to make zucchini bread out of that.  Good thing the bread freezes well.

Come visit when you can and please continue to pray for those who make CNH possible.  Thank you to the Adkins brothers for providing such a beautiful place for these precious children and their families.

For the children,
Randy

 


Comments

  1. Jaime Crawford says:

    Love Kane! Cutie pie!

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